Celebration Time

Last Thursday i passed my CIEH Professional Trainers Certificate.

Jean did better. She passed with a credit. She really deserved it. She gave an absolutely brilliant presentation on ‘Love Food Hate Waste’ which was all about making the best out of food, saving money and saving time. It was impressive stuff and put over in such a friendly way

Now its just a case of me doing more paid Disability Equality Training and Jean doing more in her chosen field of Community Food Work and Community Nutritional Advice.

It feels good to have the paper that says we know what we are doing

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Chatting to a Chugger

Clara stood on the corner in her bright yellow t proclaiming Whizzkidz. She wanted me to stop and talk. or did she? Maybe she just wanted to see the colour of my money. I asked her to walk with me. I was going to a cash point within 20 meters, just a few short strides. She refused. i said stay there. I’ll be back. Just what i need – a chat with a chugger.

She was pleased i stood by word and i told her i’d heard of whizzkidz and could she tell me if it was an organisation for disabled children or of disabled children. She said ‘for’. One point against. I asked her if she knew what it meant. She said yes. 2 points against. She asked me how come i knew whizzkidz I said i work for a disabled people’s organisation. She asked me which one? We were getting on famously. I named names and she had never heard mine. It’s just a small thing Clara. A local group that some people appreciate.

She proffered me her PRFA or was it PFRA board. I couldn’t see it and I told her so. She spelt it out. i said, no i can’t see it. I can see that part, i can’t see the rest of it. She said it was her guidelines. it told her what she could do. i asked if it said she couldn’t walk with me. She said no not specifically but if she had walked with me and asked for money it could have looked like she was hassling me. So she was after my money but she didn’t want to hassle me. She was nice was Clara. Is nice is Clara.

She showed me the harassment clause and i said, no i’m sorry but i can’t see it and i am surprised that the info isn’t more accessible in any case. The points against this nice person were piling up but she continued to save herself. I’ll tell them she said and i’m sure she will.

Then she read the small print. Whizzkidz had invested £24,000 in the campaign in the hope opf returning £97,000 (must confess i haven’t got the exact figures but i know i’m close). I said what does invested mean. She hesitated. I said it means they are paying your wages and that’s ok because you are worth it aren’t you Clara and she agreed with me. She is worth it. We are all worth it.

She showed me some more of her words and pictures. I told her i couldn’t see it. She gave me the headlines. I stopped her at campaigning.

I like that i said. i like campaigning. Tell me what that one says. She told me about a 15 year old wheelchair using kid who was leading the campaign for mobility aids and she told me 70,000 kids need mobility aids. I asked her if she knew how many of those kids would be wheelchair users and if she knew if the campaign leader was being paid and how much of the £97k would be going into a 15 year olds’ pocket. She was happy to guess the number of wheelchair users but couldn’t tell me the rest. I said i think this is sad Clara. i think the kid in charge is a tokenistic figure don’t you? Is she sitting on the board? Does she have voting rights? Not necessarily. More than likely just another kid being used by a charity full of white middle class, i stopped myself from saying wankers, and got the word people out which was very very good of me. What? With my history and everything.

So i got back to asking about the words on the papers she was holding and asked her if she thought i should have the right to see them and she thought i did. In fact she was getting quite uppity about it and understanding the injustice of it all. So i asked her if she thought kids who needed mobility aids should have them as a right and she said she did. So, i said, and that’s why i won’t be giving to your charity but as you’ve been so nice to me Clara i’ll tell you what i’ll do i’ll go home and i’ll send a pound or two to Imogen May, an activist i know who needs 12k for a communication board so she can talk to other students in her class, so she can tell models what they should be doing when she goes to work as a photographer and i’ll send some quidz (oh the irony of that zed or should that be zee) to DAN. Have you heard of DAN Clara? No i haven’t Rich. We were on first name terms. They’re an unfunded organisation of disabled people, owned and controlled by disabled people, who get disabled people out and on the streets to complain about things and to stand up for rights. That’s where i think the best chance of getting the mobility aid is Clara and think that’s where we can get it as a right.

A couple of asides. Clara told me for every pound i gave if i signed this gift aid form the government would give another whopping 28%. So if i gave £10 it would be worth £12.80 which would be good but if they will do this and i presume they do it out of taxes why don’t they add a penny in the pound to taxes so we get the mobility aids as a right.

Later i saw a kid on a scooter dropping dirty tissues everywhere she went. Her mom was talking about her legs and how she might need to use a chair, poor little darling, and she couldn’t be expected to pick up the tissues and i noticed two lines of plastic running up from her shoes like a splint and i thought is this the little angels mobility aid. Wonder how much that plastic costs? Bet i’d be surprised. Bet I wouldn’t. The cost of aids is rediculous. Why doesn’t the government do something about this shifty side of rip off britain that make money out of us.

Anyway a couple of links for you. One for Imogen May
Another for DAN’s facebook page:

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Disability Humour 3

I’m not sure why i was thinking about this – i think it was because there was another incident very much like the one i am about to report on. Among my different impairments there resides a flunctuating speech impairment. It’s normally ok. honest. Nothing to question my intelligence about – or so i’d have thought but so many do don’t they.

Anyway i’d been on a direct action with the disabled people’s direct action network which has its own facebook page by the way and was driving home in the company of Andy Gill who stopped at the Archway to get a packet of fags and being a smoker at the time i thought this was an activity i could freely engage in.

Andy got his fags and then i started ordering mine and the stammer came in much to the alarm of the terrified shop assistant. She didn’t know that she could ask me what it was that i wanted and she started palpitating. Completely lost she turned to Andy to find out if i took sugar with my silk cut and Andy just stood there with his arms crossed. Stumm. Saying nothing. Silently insisting if she really wanted to know she could ask me.

Anyway this old guy came in and the shop assistant starting asking him what was it I wanted and of cause he didn’t know. A queue started to develop. From seeds grow acorns, from acorns grow oaks. Or does it? I know nothing about biology. And the shop started to get packed out and people started to get angry. They really weren’t angry with me but they did want to get served and I wasn’t going to let go of my place in the queue until I got served and then it happened. She asked me what I wanted and I told her. We left the shop armed with our stogies and full of laughter.

I review this situation and I think to myself  you ever wanna close a shop…… send your stammerers in first – your most powerful speakers.

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a great day on a social utility

I enjoyed my facebook today. My friends are doing stuff and it all became apparent.

Welcome to the disability arts circuit.

It’s a source of pride to me that i know Julie MacNamara and Liz Crow. Both have new shows on in London. You should go she them before they move on. Julie is a massive all round talent and turn her hand to most things. Liz is one of the most sly, acerbic you ever saw race you to the fire exit.

I’ve been with both on DAN actions. Its good to have them with you. Community artists lifting the spirit. I’ve also done this with Liz Crow. Liz has been one of our leaders in television production but she’s also on the fourth plinth, this saturday night, 8th August 2009 at 10 pm until 11. I’m not sure what she’ll do but its an anti genetics thing and we sure seem to need this message going out with the pro death club making decent in roads of late. Not sure what Liz is doing. Feel pretty sure it will be brave without being tragic. Pretty sure that she’s got links of videos from Nabil Shaban reminding us a) of one of his shows and b) the truth about the nazi death camps. Good viewing. Check it out.

And dig the posters below too.

Mental Health, Learning Disability, Gay days in the Care Home

Mental Health, Learning Disability, Gay days in the Care Home

Disability Arts and Culture

Disability Arts and Culture

  • The First To Go Into The Nazi Death CampsThe First To Go Into The Nazi Death Camps
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    i was inspired last night so will start a poem now which you can edit and finish for me

    we were told we could integrate in forty eight by the creation of the welfare state
    the NHS could choose homes in the community or institutions
    well you know their resolutions and that they’re no solutions
    but like 60’s kinks who were tired of waiting we’re still waiting to be integrating
    so i’ll never get tired of stating
    don’t be slow free our people now

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    The Four R’s

    Reading, Writing and Rithmetic. No. It was a bad joke then and its a bad joke now.

    Here’s four R’s i created for disabled people using advocacy as a means to achieving their empowerment.

    Rights
    Risk
    Respect
    Responsibility

    I can’t remember now how i traditionally use them but say it goes like this.

    We need to know what our rights are. We need to understand that in making a stand for our rights we are risking something. I understand disability as discrimination based on impairment. It is the discriminators who are in a position of power and influence. Not us. It is them who stand to lose if we stand for our rights. it is them who will punish or avoid sharing or giving our rights, it is them who we are at risk from. However for them to understand us as equals is a risk that we should choose to take. In the struggle of risks over rights we engage in a process where the outcome will be respect. The discriminators need to learn that we are not just there for their benefit, their wage, their income, their status, their patronage and allowances. They need to understand and respect us as equals. They need to include us equally. That is our right. It is their responsibility and it is them that we need to get the respect from before we can respect ourselves.

    But we also need to be responsible. We need to engage. We need to learn to set the rules for our engagement. We need to speak up and say what our ground rules are. What it means for them to include us. At the end of the process we can take more and more responsibility for ourselves. We can say here it is we are included, here it is this is our contribution.

    Where responsibility does not work and where Blair and the Blairites got it wrong and continue to get it wrong is just because we have rights does not mean we have responsibilities too, a responsibility to engage, a responsibility to stand for those rights. Such ideas are basically ignorant of the process of empowerment. Empowerment does not exist because a right exists on the statue book. Empowerment happens over time, as a result of engagement in the process. The risks we take are a part of that engagement, the risk that the other side does not understand, does not want to support, does not want our inclusion is ever present. This is why the attack called welfare reform will not work, why it will drive many of us into poverty, into exclusion, toward harder days. Just because they are saying we can work now does not mean we will find work. It is also why the transformation of social care will be slow and painful. the discriminator does not want us to take the risks we need to take even though the government tell them time after time after time that they cannot and should not be risk averse. They are scared of taking the risk. They will lose the power, they will get into trouble if it goes wrong. They are scared to empower. And so it is that we continue to be disrespected, denied rights, denied the right to choose the risks we want to take, why we are not given responsibility even for ourselves. The process of discrimination and disempowerment needs to be understood and taken on board first before changes are made – though i take that back, we can’t wait for such understanding from the discriminators. We need change and we need to choose our on levels for involvement and participation and inclusion. We need to accept for ourselves the level of exclusion that is acceptable to us.

    Yesterday, i spoke to an advocate who challenged me on this. He felt that empowerment was about giving people responsibility and just letting them get on with it. I wanted to prove to him that this is the route to our failure, this is how we are set up to fail. Advocates cannot do this. This is about us abdicating responsibility for the risks that our partners are taking. Advocates cannot just say do it. Advocates need to say we will support you to do it. And then we will support you to do it again. A management consultant once explained delegation to me. He said you give a job to someone else and you help them to do it three times. If they do not get it the third time they will never get it. I thought there was a certain wisdom in that but i do not think Advocates can uphold that mantra and if it means we support someone to do something four time or five times so be it. Its about the process of empowerment. We have to wait until we understand where our partner can say, i can do this now. i do not need you, i am not dependent upon you to do it.

    That’s my view anyway and it is a reintroduction to the four r’s for those readers who have come across the concept before. But what if anything does the four r’s mean to you.

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    i’m special me

    Oh dear oh dear me.

    Been back in the old homelands. Been listening to… what’s that five letter word starting with S and ending in e. S***e.

    I’m sure no one thinks I’m an angel. I’m an advocate. Some people think I’m more of a devil really. But, this is it, why is it that most folk; you tell them you work with and for disabled people and they think you are devine? That you’re special.

    Mom tried to celebrate the fact that we all, she, her daughter, her grand daughter and me all ended up in the care industry. ‘Advocates against the care industry’, that would make a good slogan for me. Not actually accurate in terms of how I feel, but pretty close nonetheless.

    She continued to talk us through the care industry. All about the stuff we do for these mental people. Thanks for the language lesson like.

    My niece told us she gets smacked at work. her first smack is scheduled for 10 o’clock when someone wants his lunch and she says no. Wake up. Don’t say no. Say yes. I’m not going to tell you when to eat, so don’t tell me and don’t tell anyone else. At the far from worse say yes and then distract, say yes and organise a snack. I’m not sure what is going on here but was this kid woke up at 6 o’clock and bussed in. Has he not eaten for four hours. Investigate the course of the hunger. Don’t put yourself in the way of a smack. Smack. Whoa Who is it good for? Absolutely no one.

    And then this little classic. “I’ll take them swimming, I’ll get in the pool with them because I’m the one who does special needs swimming”. Think about it. What special needs could you possibly have when swimming. Getting into the pool, doing your thing in the pool and getting out again. The same as everybody else then. Hello. Good Morning. Wakey Wakey. Where’s the special need? It might be to have the choice not to go to the pool, it might be the right not to get in the pool if you don’t want to, it might be not to drown. Oh the same as all of us then. Why do we have to keep on listening to this nonsense about special needs.

    Ain’t no wonder someone thinks I’m an angel.

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    3 new courses focussed on disability issues

    I have recently devised 3 new courses and i will be runnig these for Action for Advocacy. They are:

    1) Promoting Social Justice. The advocacy definition says advocacy is about social justice. Do you look at advocacy like this? Would you like to know more? Not just another exploration of the social model of disability but also an opportunity to show how the model has worked and how our world has changed because of it and tyhe demands that disabled people have made to live independently.

    2) Using People’s Stories. In advocacy we talk about collecting advocacy stories and using them in training. This is one story. it’s kenny’s. Kenny is a guy with learning disabilities who wanted to become independent. This is about what happened to him. His experience involved my intervention as an advocate and highlighted dilemmas for advocates. This course tells the story and explores areas of difficulty.

    3) Using Words and Pictures. Accessible Information and how to do it. Now including a session on language and imagery. The world is changing. We are getting better at making information available. We have cmapaigned long and hard for accessible information. the best way to make it happen is to do it yourself though. Don’t depend on others.

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    extreme evidence that we need to take the courage to speak

    you needn't think we will be falling for that one

    you needn't think we will be falling for that one

    This is one of my disabled humour photos.

    you know what happens in Snuff Street don’t ya?

    you know what snuff means don’t ya?

    where do you think they get the movies from?

    if you get past the snuffer you enter this chamber with a shower head that doesn’t release water.

    let’s see more jokey comments here

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    The courage to speak

    Ah!!! Yes!!! Advocacy!!!! it’s so simple. All you need to do is speak.

    Express a choice and tell someone what the choice is.

    Easy Peasey Lemon Squeezy.

    I think if anyone wants to know how difficult it is to speak you should go to this link right now where Dame Jane Campbell speaks out against assisted dying in the guardian; http://www.facebook.com/ext/share.php?sid=97721277658&h=OrXHV&u=si-5C&ref=nf

    You should see the response. It’s largely idiotic criticism which i call tautology but i sometimes get my words wrong. What it suggests to me, or indeed what it reminds me, is sometimes you need to speak up in environments where you are likely to be damned for doing so. The constant abuse of complaints procedures to protect the guilty would be another example of this.

    Anyway, i have spoken up and you can see my response if you follow the same link to page 4

    I’m now sure that jane would like me to give you the link for Not Dead Yet which i understand she is standing down from. Hopefully we’ll have someone who can take up the reins.

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