Archive for Get Involved

The Four R’s

Reading, Writing and Rithmetic. No. It was a bad joke then and its a bad joke now.

Here’s four R’s i created for disabled people using advocacy as a means to achieving their empowerment.

Rights
Risk
Respect
Responsibility

I can’t remember now how i traditionally use them but say it goes like this.

We need to know what our rights are. We need to understand that in making a stand for our rights we are risking something. I understand disability as discrimination based on impairment. It is the discriminators who are in a position of power and influence. Not us. It is them who stand to lose if we stand for our rights. it is them who will punish or avoid sharing or giving our rights, it is them who we are at risk from. However for them to understand us as equals is a risk that we should choose to take. In the struggle of risks over rights we engage in a process where the outcome will be respect. The discriminators need to learn that we are not just there for their benefit, their wage, their income, their status, their patronage and allowances. They need to understand and respect us as equals. They need to include us equally. That is our right. It is their responsibility and it is them that we need to get the respect from before we can respect ourselves.

But we also need to be responsible. We need to engage. We need to learn to set the rules for our engagement. We need to speak up and say what our ground rules are. What it means for them to include us. At the end of the process we can take more and more responsibility for ourselves. We can say here it is we are included, here it is this is our contribution.

Where responsibility does not work and where Blair and the Blairites got it wrong and continue to get it wrong is just because we have rights does not mean we have responsibilities too, a responsibility to engage, a responsibility to stand for those rights. Such ideas are basically ignorant of the process of empowerment. Empowerment does not exist because a right exists on the statue book. Empowerment happens over time, as a result of engagement in the process. The risks we take are a part of that engagement, the risk that the other side does not understand, does not want to support, does not want our inclusion is ever present. This is why the attack called welfare reform will not work, why it will drive many of us into poverty, into exclusion, toward harder days. Just because they are saying we can work now does not mean we will find work. It is also why the transformation of social care will be slow and painful. the discriminator does not want us to take the risks we need to take even though the government tell them time after time after time that they cannot and should not be risk averse. They are scared of taking the risk. They will lose the power, they will get into trouble if it goes wrong. They are scared to empower. And so it is that we continue to be disrespected, denied rights, denied the right to choose the risks we want to take, why we are not given responsibility even for ourselves. The process of discrimination and disempowerment needs to be understood and taken on board first before changes are made – though i take that back, we can’t wait for such understanding from the discriminators. We need change and we need to choose our on levels for involvement and participation and inclusion. We need to accept for ourselves the level of exclusion that is acceptable to us.

Yesterday, i spoke to an advocate who challenged me on this. He felt that empowerment was about giving people responsibility and just letting them get on with it. I wanted to prove to him that this is the route to our failure, this is how we are set up to fail. Advocates cannot do this. This is about us abdicating responsibility for the risks that our partners are taking. Advocates cannot just say do it. Advocates need to say we will support you to do it. And then we will support you to do it again. A management consultant once explained delegation to me. He said you give a job to someone else and you help them to do it three times. If they do not get it the third time they will never get it. I thought there was a certain wisdom in that but i do not think Advocates can uphold that mantra and if it means we support someone to do something four time or five times so be it. Its about the process of empowerment. We have to wait until we understand where our partner can say, i can do this now. i do not need you, i am not dependent upon you to do it.

That’s my view anyway and it is a reintroduction to the four r’s for those readers who have come across the concept before. But what if anything does the four r’s mean to you.

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The Social Model in Action

Heard a great story today.

Kenny came into the office. He is a self advocate, management committee member and currently a volunteer developing office skills. To get to work he caught the number 6 bus from Queens Park to Willesden.

It was a crowded bus and he was pleased to get a seat close to the driver as his balance isn’t great and he sometimes finds using crowded buses difficult.

The woman next to him asked him to move and he refused saying its a crowded bus and its hard for me to move. The woman persevered on the grounds that ‘mental handicaps’, (her words), shouldn’t be sitting by her.

The driver stopped the bus and intervened. The woman got up and left the bus. Hurrah!!!!.

This sounded like a great story to me as Kenny as found it really hard to be accepted by the community he has lived in for so long. He knows he has a right to be there and that he wants to be there. in spite of being assaulted and insulted, particularly on buses where the great British public holds sway. He is still out there fighting for his right to live in the community, speaking up for himself.

The other great part of the story was a driver being prepared to intervene and to speak up for Kenny. The thing about the social model of disability is the clue is in the word. It’s social. We are all involved. We should all take responsibility. Few of us do. Discrimination goes on. Disabled people and it seems people with learning disabilities in particular get abused. It will only stop when we stand up and be counted. It stopped in this story because two people stood up to be counted. Will you?

Kenny and I sent an email to Transport For London as a means of celebrating a moment in which he was annoyed to be challenged and insulted and then happy to be supported.

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Sick Note Britain – What Disabled People are sick of

Watch out for news and media stories concerning the return of the Disabled People’s Direct Action Network.

Completely sick of the way welfare reform has been managed by the government and their lap dog media allies i asked disabled people what they are sick of. This is what they said;

Sick of Adjustments not being made to allow disabled people to access the workplace

Sick Of Employers getting away with not making adjustments.

Sick Of Poverty

Sick Of Not being able to afford to eat a healthy diet.

Sick Of Standards of living that put a strain on human relationships

Sick Of Standards of living tearing our families apart.

Sick Of Pregnant women given no chance to meet disabled people

Sick Of Pregnant Women being told disabled children will be a burden

Sick Of Young disabled women being sterilized without consent.

Sick Of Young disabled people being given no sense of self-worth and
respect.

Sick Of Hypocrisy. Organisations recognising equality and access, but failing to deliver.

Sick of Companies failing to implement best practise

Sick Of Businesses not complying with legislation

Sick Of People not asking me how they may best assist me.

Sick Of Business not being able to recognise diverse disabled people

Sick Of Local authorities’ falsehoods about equality for disabled people.

Sick Of disabled people failing to demonstrate for equality

Sick Of Disabled People not campaigning against bad welfare reforms

Sick Of Pathways to Work not employing disabled people

Sick Note Legislation enabling employers to keep us out of work

Sick Note Disabled people compromising the social model to suit themselves

Sick Of Fair Access to Care criteria being the precise opposite of what they say

Sick of Fair Access To Care ensuring unfair, unequal lack of access to services

Sick Of Fair Access to Care showing no discernable level of care

Sick Of Residential cesspits called nursing homes charging more than the Ritz hotel

Sick Of Residential Cesspits locking us away from the rest of the community.

Sick Of Community Care charges taxing our right to go to the toilet, eat, get dressed.

Sick Of Residential Cesspits stopping independent living let alone having a life!

Sick Of Segregated education

Sick Of less than 0.1 percent of all housing being accessible

Sick Of other residential accommodation not being accessible

Sick Of Widespread, institutionalised discrimination against poor people

Sick Of discrimination in all social, political, economic and personal aspects of life.

Sick Of A complete lack of accessible information in society.

Sick Of Privatisation in general and of the health service in particular.

Sick Of Exclusion of Disabled People from most aspects of the job market
Sick Of Prejudicial government claims about lazy scrounging cripples

Sick Of Prejudicial media claims about lazy scrounging cripples on benefit Sick of Prejudicial claims reinforcing and justifying stereotypes and myths about us.

Sick Of Prejudical claims justifying and legitimatising hate crimes against us.

Sick Of Ingrained institutionalised discrimination against Disabled People

Sick Of Ingrained institutionalised discrimination in the criminal justice system

Sick Of the criminal justice system disregarding hate crimes against Disabled People.

Sick Of the criminal justice system sanctioning murderers of disabled people

Sick Of Scope, Mencap, Mind, RADAR, Leonard Cheshire, RNIB, RNID

Sick Of Social Workers (bless ‘em)

Sick of people who say they speak for us because of the belief that we can’t speak for ourselves

Sick Of Oppressive people (and oppressive organisations)

Sick Of Organisations which claim to represent us but can’t get more than the number of a football team along to their AGM’s.

Sick Of People who claim to be apolitical but are really supporters of the status quo

Sick Of People who treat other people as less than human because of the colour of their skin, their sexuality or their gender.

Sick Of People who express discriminatory views without knowing the facts

Sick Of People who call for asylum seekers and refugees to be sent back to “where they came from”

Sick Of People who used campaigning work to get their snouts in the trough.

Sick Of People who work for service providers, carry out assessments – inc; financial ones

Sick Of People who defend the criteria used to exclude most disabled people

Sick Of People who excuse themselves by saying “I’m only doing my job.”

Sick Of Rules, Regulations, Bureaucracy.

Sick Of Having to still campaign for things we asked for 25 years ago

Sick Of Still having to campaign for access

Sick Of Still campaigning for the right to live where we like with whom we like

Sick Of Still campaigning for the right to go to the loo when we want

Sick Of Still having to campaign to eat what we want,

Sick Of Still campaigning for accessible housing

Sick Of Still campaigning for an adequate income

Sick Of Disabled people’s groups that still don’t take up race, gender, sexuality issues

Sick Of Lists!!


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Institutions are no Solutions

The Jersey children homes scandal is of course horrific and a source of pain to many but what gets my goat is the sense of shock.

Abuse in institutions is well documented. The disabled people’s direct action network ran a ‘free our people’ campaign. It sought the closure of institutions and demanded the creation of independent living centres. Some danners still support this call. Royal commissions have been set up to investigate abuse of elders in nursing homes. There have been numerous court cases and dramas on tv about abuse in childrens homes.

Disabled people don’t necessarily want to be seen as vulnerable people. But we are sometimes vulnerable in different circumstances – as are we all. The social model of disability would suggest to some that we are particularly vulnerable in institutions. It suggests that the institutions depend on systems that grind down the best of us – staff and users. It causes familiarity and familiarity breeds contempt and contempt leads to abuse.

Only yesterday i was talking to a friend who told stories of personal abuse. He has been attacked many times on the streets just for being a disabled person. I reminded him the first time i met him he was complaining that a member of staff in an institution had kicked him in the head. He remembered this story and confirmed it. Which interested me greatly has i know he has been hiding it for years. When i asked him all those years ago if he had been kicked in the head he denied it. He didn’t want to get in any more trouble. This is how the wall of silence develops. this is how the institutions get away with it. the other tool they use is the idea of reliable witnesses. We are not treated like reliable witnesses. Policies and procedures are another good tool. Some agencies use them to defend their staff. You can normally spot them by how they respond to complaints.

Against this we need to balance the risks of independence. My friend was attacked more on the streets than he ever was in an institutional setting. Hate Crime is new on the police agenda and new to the legislation. What the social model might suggest here is that we know the risks of life outside. We need to talk to the policy makers and develop strategies for minimising the harm that it might cause. But more than this each and everyone of us needs to take personal responsibility. If we see it happening we need to intervene at a level that is best for us. Not all of us can stand up to what is happening but we can create diversions, we may be able to shout for help, we may be able to use our mobiles.

Abuse is bad. We have to stop it.

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Get Involved

As a member of the Disabled People’s Direct Action Network, an activist group that uses non violent tactics to promote the rights of disabled people, i am keen to see others getting involved.

Here’s some links:

  • danmail@yahoogroups.com Join the group. Chat with established Danners; Disabled Activists who have been around since year zero.
  • owie.moonwolf.net A new website under development. Contribute to its growth.
  • facebook.com. Search for the group Direct Action Network and make friends you can see.

Get involved

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