Posts Tagged advocacy

A Strange Reference

Mr X deserves more credit. he's earned it.

Mr X deserves more credit. He’s earned it.

A heavy discussion ensues across the desks. It concerned the value of advocates. I was being portrayed as an exemplar. “You have done a lot for me”, said the junior member of the team, “I would never have known about disability rights, disability politics without you. Like it or not you are a leader”.

I don’t like it. “Where would Burn Pudsey Friday (BPF) be without you”. I have administered and facilitated BPF and kept it in a restricted public eye, but have actively avoided assuming leadership. Building BPF so that people can participate at their own level, in their own way. I’m not even confident this opportunity is ever taken. However, its slightly different this year. Savile, abuse, links to charity.

Then a new revelation.

“Mr X would certainly miss you. He has massive respect for you. He sees you as a father figure. he didn’t have much of a life with his own dad who was always beating him and his mom, telling him he would never amount to anything; that he was hopeless. You showed him what he could do. you believed in him. Through you he became a service user representative. you gave him the chance to take photos, gave him the confidence to tell his own story, made him a trainer, showed him how to engage with professionals”.

I am knocked back by this. I did not k now the father issues, the damage he had waged. I thought about Mr X and all the times I jovially told him how much I hated him. It was only a joke and X knew it but if I had known his history I would have found a kinder joke.

Mr X was always there. he had the skills, massive humour. He was the real leader. His story is what makes him so great. The man survived institutionalisation for more than 40 years. His impairments saw him lost to society for far too  long. the difference I made if any came from not being risk averse, committed to enabling the empowerment of those who could be responsible for themselves. Mr X is something else. he came with personality, cheek. He was already trusted by his peers. I don’t think they ever recovered from his move towards independence. Whilst they lost him his life exploded. He found a place in the community, somewhere to live and grow. Friendships developed. Social Capital worked for him. he found shops to go to where he could trust that proprietors would not rip him off but support his lack of understanding over money. people responded to him. he learned to trust. He had an acute intelligence. He knew the places he could feel safe in a sometime hostile environment.

I had a lot of time for Mr X. He had time for me and the organisation I worked for. The power of our relationship, his gifts as my co-trainer, in our Becoming Independent co-production, worked because of what he gave. It feels strange that i should be credited for what he gave. Advocacy shouldn’t be like that.

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An Advocates Dream

A Dream For Happy Advocates

The dream went like this.

We all walked together along the towpath. A group of disabled people, the three authority figures who were going to lead the consultation and me; the advocate.

I asked the man from the NHS how the consultation would go – if he would genuinely listen to what was being said. He answered incorrectly and found himself feet first in a dry canal. I laughed and said I had tried on the same thing for size the previous day. I’m not sure that he appreciated his trip.

We found ourselves in the community centre. The authoritarians stayed in the main hall with another group of disabled people who they had come to lead. I stayed with them for a while before walking off disenchanted with process to spend time with the silent majority I had walked along the canal with.

The three wise men came in followed by a clutch of wheelchair users complaining that the consultation was flawed because here was a group of people who had not been represented. At which point I got up and started working with the group, asking questions that could be understood, using mechanisms that we had agreed as silent people to show that we understood and had our own views

It felt good. The dream finished.

The thing with dreams is they never show us anything that we don’t know. The form they follow is within our experience. So, as an advocate I h ave to be careful with this dream. I should not take it literally. I need to ask questions.

What if pushing the NHS rep in the dry canal was a demonstration of my anger? What if I am recognising that my anger is a good thing,not a bad thing, that it has to be expressed?

What if the silent majority were not those people who had not been represented but aspects of me that had never been spoken, the things that had never been said, unexpressed desires?

What if the wise men were those things within me that didn’t allow me to speak for myself, that suppressed my own position, the things that I truly believed in.

What if the clutch of wheelchair users was the device within me that acted as the key that gave me speech, expression, and what if turning the key allowed me to speak for myself, of myself, and the hubbub of action that followed was my happiness at letting myself speak for me?

And finally what if there are things in this dream that resonate for other advocates. Not just in what they do but who they are?

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Try, Fail, Blame, Trouble

After many years of keeping the scars of special school in place (better the scar than the sight of blood again) I have reached a new stage of realisation through a few weeks of psychoanalysis/therapy/cognitive behaviour work

I went to special school or as they called it then a residential school for delicate children due to the presence of a physical impairment. I acquired a communication impairment and much later still, even after a few years of mainstreaming experienced some mental distress which i deal with today as i swing between depression and anxiety. Talking about this journey at a recent session i received and transmitted this information about my experiences.

I went to the first school after the pre-special school which I quite enjoyed. I attended breakfast after the first night and the schools rabbit killer commanded me to pour the tea with the very firm instruction that I could only use one hand. I obeyed. I shook, I missed the cups. We had a white tablecloth. i was horrified to see a brown stain land and spread – get bigger and bigger. I had failed. I revealed myself to be weak. I could now be blamed and experience trouble for my sins.

Later when it was discovered that i was not receiving an education my parents sent me to another special school in search of learning. Not wise. I was now the new kid again. My communication impairment had kicked in big time. Little Timmy laughed at me. I cried. PE Teacher asked why. I told him. He related the obvious. I was bigger, faster, heavier, harder than Little Timmy. If he laughed again I should deck him one and let that be the end of it. Little Timmy laughed. I decked him one. Timmy cried. I was caught. Sent to the head for punishment. I had failed. I was blamed. I was up for all kinds of troubles from the staff for my thuggish response (I was one to be watched) and from little Timmy’s well established fan club – all the little bullies from the weakest to the top.

I’m not that keen on meeting people. I’m not good for small talk. I don’t want to put myself in a position where i fail, become blamed and find. in the end of trouble. this is why i hide. This is why I cover up. This is what i want to remain hidden. This is what is inside me. It’s not a full picture.

I am a very successful system survivor. I train. I write. I photograph. I advocate. I express. I activate. I am multi-talented. I have a life experience that is so strong. I can do Disability equality Training standing on me head with one hand tied behind my back. I have good experience of advocacy and 20 years on I know a lot about it. I have led campaigns and joined in others. You get good experience, knowledge and talent when employing me. But there is much that is weak, that will go undisclosed – unless I choose to engage and fix it. This will bring in new strengths.

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Why Volunteer To Become An Advocate

As someone who recruits, trains and supports volunteer advocates I sometimes wonder why the person I am recruiting is interested in becoming an advocate so obviously it is a question that i will ask.

A young prospective advocate recently told me that Advocacy is about distributing information and confidence and that she wanted to do it.

I think that is as good an answer as I have ever got and i found it particularly encouraging that this came from such a young candidate. It gives hope for the future.

I have personally defined advocacy as giving information so that people can make their own choices. I share this in training I do with Brent Advocacy Concerns. I believe that in making a choice consequences will follow but the confidence that follows from making the decision is an essential step in enabling empowerment. Which is why the candidates follow to information with confidence felt so important to me.

It also leads to me showing my support for the advocacy charter which touches on empowerment and other important advocacy principles

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Sick Note Britain – What Disabled People are sick of

Watch out for news and media stories concerning the return of the Disabled People’s Direct Action Network.

Completely sick of the way welfare reform has been managed by the government and their lap dog media allies i asked disabled people what they are sick of. This is what they said;

Sick of Adjustments not being made to allow disabled people to access the workplace

Sick Of Employers getting away with not making adjustments.

Sick Of Poverty

Sick Of Not being able to afford to eat a healthy diet.

Sick Of Standards of living that put a strain on human relationships

Sick Of Standards of living tearing our families apart.

Sick Of Pregnant women given no chance to meet disabled people

Sick Of Pregnant Women being told disabled children will be a burden

Sick Of Young disabled women being sterilized without consent.

Sick Of Young disabled people being given no sense of self-worth and
respect.

Sick Of Hypocrisy. Organisations recognising equality and access, but failing to deliver.

Sick of Companies failing to implement best practise

Sick Of Businesses not complying with legislation

Sick Of People not asking me how they may best assist me.

Sick Of Business not being able to recognise diverse disabled people

Sick Of Local authorities’ falsehoods about equality for disabled people.

Sick Of disabled people failing to demonstrate for equality

Sick Of Disabled People not campaigning against bad welfare reforms

Sick Of Pathways to Work not employing disabled people

Sick Note Legislation enabling employers to keep us out of work

Sick Note Disabled people compromising the social model to suit themselves

Sick Of Fair Access to Care criteria being the precise opposite of what they say

Sick of Fair Access To Care ensuring unfair, unequal lack of access to services

Sick Of Fair Access to Care showing no discernable level of care

Sick Of Residential cesspits called nursing homes charging more than the Ritz hotel

Sick Of Residential Cesspits locking us away from the rest of the community.

Sick Of Community Care charges taxing our right to go to the toilet, eat, get dressed.

Sick Of Residential Cesspits stopping independent living let alone having a life!

Sick Of Segregated education

Sick Of less than 0.1 percent of all housing being accessible

Sick Of other residential accommodation not being accessible

Sick Of Widespread, institutionalised discrimination against poor people

Sick Of discrimination in all social, political, economic and personal aspects of life.

Sick Of A complete lack of accessible information in society.

Sick Of Privatisation in general and of the health service in particular.

Sick Of Exclusion of Disabled People from most aspects of the job market
Sick Of Prejudicial government claims about lazy scrounging cripples

Sick Of Prejudicial media claims about lazy scrounging cripples on benefit Sick of Prejudicial claims reinforcing and justifying stereotypes and myths about us.

Sick Of Prejudical claims justifying and legitimatising hate crimes against us.

Sick Of Ingrained institutionalised discrimination against Disabled People

Sick Of Ingrained institutionalised discrimination in the criminal justice system

Sick Of the criminal justice system disregarding hate crimes against Disabled People.

Sick Of the criminal justice system sanctioning murderers of disabled people

Sick Of Scope, Mencap, Mind, RADAR, Leonard Cheshire, RNIB, RNID

Sick Of Social Workers (bless ‘em)

Sick of people who say they speak for us because of the belief that we can’t speak for ourselves

Sick Of Oppressive people (and oppressive organisations)

Sick Of Organisations which claim to represent us but can’t get more than the number of a football team along to their AGM’s.

Sick Of People who claim to be apolitical but are really supporters of the status quo

Sick Of People who treat other people as less than human because of the colour of their skin, their sexuality or their gender.

Sick Of People who express discriminatory views without knowing the facts

Sick Of People who call for asylum seekers and refugees to be sent back to “where they came from”

Sick Of People who used campaigning work to get their snouts in the trough.

Sick Of People who work for service providers, carry out assessments – inc; financial ones

Sick Of People who defend the criteria used to exclude most disabled people

Sick Of People who excuse themselves by saying “I’m only doing my job.”

Sick Of Rules, Regulations, Bureaucracy.

Sick Of Having to still campaign for things we asked for 25 years ago

Sick Of Still having to campaign for access

Sick Of Still campaigning for the right to live where we like with whom we like

Sick Of Still campaigning for the right to go to the loo when we want

Sick Of Still having to campaign to eat what we want,

Sick Of Still campaigning for accessible housing

Sick Of Still campaigning for an adequate income

Sick Of Disabled people’s groups that still don’t take up race, gender, sexuality issues

Sick Of Lists!!


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